Waffles is ONE!!

Our yorkie-poo Puppy is now One year old. she is full-grown we are told. But at just 9 pounds she will always be a puppy to us. People say you save an animal from the shelter. I beg to differ. She saved us. She has brought so much happiness to our lives. Shes brought my Child with aspergers out of his shell.

She goes everywhere with us. School drop offs in the morning, camping, grandparents visits. Shes a great addition to our family. Here are some pictures of her first year.

This is the day we brought her home. The first time we met her.

Buying her a harness and leash. My son with Aspergers was holding her. Since the day we brought her home he has not wanted to set her down. This is one pampered pup.

Waffles loves car rides!

Her first time camping. She had a blast. We knew at that moment we fell in love with the perfect pup for us.

Growing up! Shes looking like an adult Yorkie-poo now. She is 7 months old. She loves to nap on my bed.

Bath time! She loves the bath.

Her favorite ball. Loves wiffle balls!

The big day has arrived!! Waffles is ONE YEAR OLD!! 10/1

Here is a picture with her in her Halloween costume.

Thanks for stopping by…

 

 

 

 

What we do to entertain our Autistic children

I saw someone ask today is it rude to bring iPad to church to occupy an autistic child.

No. No it’s not rude. We’ve over the years been through many stages. My Aspie is now 16 1/2 years old. And no it doesn’t go away, or get easier. The older they get the larger the obvious split off their peers becomes.
Imagine it this way. Look at a tree, their peers are the trunk. As these kids age they go off on branches. Still part of the tree just on a different journey than their peers.

As my child has grown and matured the divide has become larger. Boys his age are dating, going to dances, working, driving a car. My son is working, and concentrating on school and Boy Scouts and could careless about getting his driving license..

Boys his age understand proper dating edicate. My son does not. In less than a week he asked out 4 girls. All said no.

When my son was young we brought his leap pad everywhere. No leap pad= major melt down. Then it was the gameboy, iPod, now its his cell phone, iPod, and lanyard or paper to make origami’s or to draw.

It doesn’t go away, it changes and matures with them. I’ve learned to ignore the stares and snarls from outsiders. Until…

Last year at our previous church, it was during the 11 am service. A service that lasts 1 1/2 hours that my son was quietly tearing up his Church bulletin to make origami’s as I forgot his paper. The Usher walked up to him sitting in the pew 2 family members away from me and says to my son “Do you not know you’re at Church?! You are disrespectful! QUIT TEARING THE BULLITIN” At which point my son gets up and walks to bathroom. He returns a bit later obviously shaken by the man.

Well.. When I was my turn for communion and that Usher came to our pew I grabbed the jerk by the hand and let him know ( You are in a Church! Your job is not to judge people! That child you just judged is AUTISTIC, that’s what he does to be able to bear sitting in a noisy, people, loud music,  filled Church! I also let him know he was to NEVER again speak to my child. Speak to me. It was 6 weeks after this even we left that Church. And I’ve never looked back. God Guided us to where we belong.

We have found a Church that accepts my child/children for they are. The Pastor likes my sons origami’s lol and all people in Church know my kids well and love them for who they are and the differences that they have. They also ask me about how the 2 are doing in school, Ieps, Boy Scouts. A completely loving Christian environment.

Moral of story, Never ever let anyone push you around, or make you feel odd about what you as a special needs parent MUST do to make your child comfortable and be able to succeed!

Thanks for stopping by..

Crafty ideas to get your kids to do what you ask without fights.

We have one son that has Aspergers, and one that has autistic like traits as doctor has said.

This house is run like a fine tuned Instrument. It has to be or nothing gets done.

There are lists and rules for everything.  Want to know if you can watch tv, play a video game, play on the computer? Go look at the daily schedule.

Want to know when your to do your chores, go ride your bike that’s on a schedule also.

Bad words (hurtful words) these Kids don’t cuss.   Bad attitude, talking back,  and you add a quarter to the jar for each offence. (The jar is being used to save for a puppy)

Everything in this house is run on a number. Even or odd. One Child is even other one takes odd numbers. It never changes. They stay either even or odd.

Who gets to sit in the front seat? What date is it? Even or odd. Who gets to pick the tv show? What date is it? Even or odd.Same with shower time. Who’s ever date it is goes first. All the meeee first fights are gone!

And yes I came up with the ideas myself 🙂

Thanks for reading. Blessings!

What a parent would do for their child..

We started a battle with the Insurance company in 2001. They wouldn’t cover anything our Asperger son needed. Such as OT, PT, feeding therapy, psychologist appointments. DENIED. No matter how we worded it all we got from the insurance company was DENIED. Speech services DENIED. The only provide speech if you’ve had a stroke. Screw everyone else that has problems.

Well we had a child that badly needed help and we had to provide it. No more eating out, getting hair done, going on expensive vacations, Buying things we WANTED. We started clipping coupons, cutting corners, shut off cable tv, newspaper, Gardner. Many things were changed. I started selling the kids old toys on ebay to supplement husbands income.

I went to the therapy unit I heard was the best for my son. I asked if we would get a cash discount. They said yes. We paid $125.00 an hour for 4 hours a week. It was a hard time. But i would do it again if i had to. The therapy got a socially shut down, messy eater, with a horrible lisp and sensory problems child  to where he is today.

A fine young man who has friends, is mainstreamed into a High school. Works community service hours because he wants to. Is getting ready to work on his Eagle Scout project in next few months. Has talked about going to a 4 year university. Is taking spanish! and is thriving.

We also signed him up for My gym which was also recommended for physical issues. And again got a cash discount in the beginning. When i showed his chart to the gym owner we only paid half the cost! The discounted for autistic children. Thats how sure they were their class would help the child.

Thank you for reading my blog. I hope you enjoyed this post..

Can I tell you about my Aspie’s life?

My 15 year old son. My oldest has Aspergers, and a list of other challenges. Such as life threatening food allergies, severe asthma, tibal torsion, severs disease, wolf white Parkinson’s, deficits in attention, language processing, pragmatic language skills, socialization, retrieval of learned information, fine motor skills, visual-motor integration, auditory processing delay, and sensory issues. I’m sure ive missed a few. But you get the idea. This child has many challenges.

He doesn’t learn like others of his age. But let me tell you this is one smart kid! While others are out ripping the sidewalk with their skateboards, my kiddo is reading reference books, or watching historical movies, or the discovery channel. He didn’t have the best of starts.

He was born positive for Group B Beta Strep, the deadly infant killer. He was very ill. He had a high fever, was stiff, coloring was bad, he had breathing problems, and he couldn’t regulate his temperature. He ended up in the NICU for an extended stay. I was told the day I had my first child that he wouldn’t survive the night. I was heart-broken. We had so many dreams for this child. I felt he was a blessing from God from the moment I knew I was pregnant. See I always knew this child would be special. I just didn’t understand how yet.

Our baby wasnt allowed to leave the NICU. So we went there to visit him when they would let us. His days were consumed by tests, feeding tubes, being in an oxygen machine, nurses stretching their hands through openings to check him. He wasnt held unless we were there. Still get’s me teary eyed. But our baby boy was a survivor! A fighter! We knew he was going to make it.

Because of his time at the NICU it took us weeks to get him on a schedule lol. This baby thought we’d stay up all night and play with him. He also had a broken clavicle that we didn’t know about till his 2 week check up with the pediatrician. That explained much of his crying. He loved to be held and cuddled. The closer the better.

When he turned 2 we figured out he wasnt the average 2 year old. His vocab was huge compared to children of his age. But he had just learned how to walk at 18 months, he never crawled, he drug himself. Doctors said he was fine. So in the fall he went off to a 2 hour pre school. Well that was a learning experience for us as well. Those teachers complained about our boy non stop. He doesn’t pay attention, he doesn’t listen, he fidgets, he doesn’t play with others, he doesn’t make eye contact, and he wont quit talking about airplanes. Well that warranted a visit to the doctor. Doctor again said he’s fine.

When he turned 5 we put him into kindergarten. He had a hard year. Always in trouble for “not paying attention” AKA not looking one in the eyes. By first grade we knew we had a problem. They held our boy back. The school tested him and said he was learning disabled. And they wanted to put him in the state-run class with the severely handi capped children. That answer I didn’t like. We went and had him tested. The testing process was long and tiring for us and him. Took 4 months, she saw him 2 times a day for 4 hrs a visit. She also watched him from a far on play dates and what not.

Well when the answer came in, we were relieved to have a name for what had caused our boy so much trouble. It was Autism spectrum Aspergers. At that moment in time I knew why the autism symbol was a puzzle piece. The puzzle had come together. It all made sense. Our boy was going to be ok. We just need to get him some help/therapy.

And with that we started 2 times a week at 2 hours a time for 5 years. All out-of-pocket. None of it, testing included was covered by our insurance. We made many sacrifices at that time to get our child what he needed. And I wouldn’t change a thing!

This child is now 15 years old. A’s and B’s one C. 3.49gpa. In honors classes, has friends, plays with others, can pay attention even though he is not looking at you! And is close to being an Eagle Scout. This child is awesome. He has worked with is challenges, we’ve tought him how to overcome them. No meds for anxiety. We do not agree with medicating him even though we were told to when he was 7. He is just fine. A valued part of society. Produced 25 hours of community service last year because he WANTED to. He’s a good leader, wonderful role model and older brother, and has grown into a wonderful young man. We are truly blessed to have him.

Sorry this post was so long. I just had so much to say.. Thanks for reading it all the way through.

Birth Order Would I Have Changed Anything?

Well my first child, my Aspie was a great pregnancy. I was healthy most of the time except for one bladder infection. And being positive for Group B Beta Strep at time of delivery. Oh how exciting the first pregnancy is! First baby was born 3 weeks before due date a whole 9 pds. Broken clavicle from delivery, and positive for Group B Beta Strep. He was a very sick baby. on oxygen, feeding tube. They didn’t think he’d make it through the night.

Well with the help of God he did!! He spent a while in the hospital till he was healthy and eating. When we brought him home he did nothing but cry. You see we weren’t told about the broken clavicle till his 2 week check-up! So we didn’t know about that. He had what was called a hep lock in his heel to get antibiotics daily for 10 days. Day 5 at home he is orange. Back to hospital with jaundice.

After all the downs with new baby we knew there had to be some ups! He was soooo cute. He watched the train go around the room at 8 weeks old. Didnt roll over till 11 months old. He spoke first word dada at 9 months old. From there it was all talk all the time! He didn’t walk till 19 months old. He has severe asthma, life threatening food allergies.

After a shot of MMR and a horrible reaction to the shot our very chatty baby went quiet. After months of testing the doctors decided he wasnt deaf, didn’t have an ear infection. Just was his personality. I didn’t believe it. But we let it go and loved out baby just the same.

It wasnt till he was in school that anything was caught. In Kinder he had a very hard time learning, got in trouble for not listening. He was hearing you. He wouldn’t look at you. But teachers felt if he was not looking he was not hearing. He also got in trouble for being a distraction to him self. Not others. First grade we held him back. School wanted to label him “learning disabled” we paid out-of-pocket for testing  to find the answer.

At that time we found out he was on the Autism Spectrum. He has Aspergers, sensory problems, auditory processing delay, and a few other things.  At that moment  in time it made perfect sence to me why the autism sign is a puzzle piece. It was like the diagnosis was putting the puzzle together. I was so relieved to know what made my boy different, special. Why he spoke such fancy sentences compared to children of his age. How it was he knew without a doubt which toy was his in a room of like toys.

We signed him up for OT, PT, and speech at a therapy company that specializes in Autism therapy. He went 2 days a week for 4 hours for 5 years. None of which was covered by my health insurance. we paid cash out-of-pocket .We had to change alot to afford his therapy, and I will tell you it was worth every penny!!! He is a fantastic, smart, kind, caring, young man, with friends!

So then we started wondering about baby 2 which was now 3 years old and not speaking much and when he did it was like another language. Many tests by doctors. Determined he could hear just fine. Doctor said he had “Autistic like behaviors” . We enrolled him in an early start class right away. He was in speech therapy for 4 years, and now wont be quiet! He has high grades in school with little to no effort. No autistic like behaviors seen any longer.

Im glad we had our Aspie son first. I had the time to devote to him one on one when he needed it. And it helped us catch his younger brothers problems 2 years before we caught his.

Both boys are growing up into fine young men. Both boys were Cub Scouts for all 5 years Tiger-WebelosII and are now Boy Scouts working to be Eagles sometime in the very near future. The oldest boy my Aspie does have to work at school for the subjects he has little interest in. The subjects he likes LOOK OUT!! He makes friends, enjoys going out to places not to busy or loud. My youngest doesnt struggle with anything in life or school.

Children are a Blessing from God. Always remember God only gives you what he feels you can handle. And I’m grateful he gave me the opportunity to love 2 great kids one being an Aspie.

Autism, Asthma, Food Allergies, Eczema …

Autism is difficult enough when your child is diagnosed with it. Then you add the asthma, food allergies, and eczema. And a few other things. And oh boy!

My son didn’t understand his body’s signs and symptoms well enough to explain them. He would say my tummy hurts and grab his chest and cough.

And he never complained about things he ate until we took those things away and replaced with things he could eat. Such as removing cows milk. And replacing with rice milk. As he is also allergic to soy.

Well anyway one day he was eating his cereal with rice milk. And he blurts out. Mommy, why doesn’t this make me dizzy? I was shocked! So I asked more questions. How did you feel after you had a peanut butter and jelly sandwich? He says like my chest was having fireworks and I couldn’t swallow.

My sons autism has made it very difficult for him to read his body. As with social cues and idioms we’ve had to teach him how to listen to what his body is telling him.

Eczema comes and goes. But autism, food allergies and asthma are here to stay.